Living with multiple sclerosis (MS) brings its own set of challenges, but the summer heat can take things to another level. For many of us, the rise in temperature isn’t just uncomfortable—it can exacerbate MS symptoms and make even basic tasks feel overwhelming. Recently, I’ve had to confront this reality head-on and make some significant adaptations to manage my heat sensitivity. Let me share my journey, strategies, and insights as I navigate this tricky season. Hopefully, it inspires or helps you in your own journey!
Heat Sensitivity and MS: Understanding the Connection
Over the past few weeks, I’ve experienced a noticeable increase in MS-related symptoms: more spasms, muscle stiffness, fatigue, and even scary moments like blurry vision. These flare-ups coincided with sudden increases in temperature, which caught me off guard despite my earlier intentions to prepare.
Through research and my own experiences, I’ve learned that this is a well-documented phenomenon in MS, known as Uhthoff’s phenomenon. It describes the temporary worsening of symptoms caused by even slight increases in body temperature. For me, this looks like heightened spasticity, muscles that feel disconnected, and a general sense of being “weaker.” It’s like my body turns into a wet noodle one moment, and then rigid with spasticity the next.
Adapting to the Heat: My Cooling Strategies
The sudden onset of heat this year forced me to take my cooling strategies seriously. Here’s how I’m adapting:
- Using air conditioning more consistently to maintain a cooler environment.
- Avoiding going out during the hottest parts of the day.
- Exploring tools like cooling vests and ice packs for added relief.
- Shifting some of my activities, like exercise, to cooler settings such as an accessible swimming pool.
If you have other cooling tips or product recommendations, I’d love to hear them!
Training and Movement: Staying Functional Despite the Heat
Even in the midst of these challenges, staying active is crucial for me. Movement helps me maintain my strength and independence. I’m currently following two complementary training approaches:
- The MS Gym: A neuroplasticity-based program developed by Trevor Wicken. Its small, intentional movements are perfect for days when fatigue or heat makes larger exercises impossible. These exercises help retrain my brain to move better, even when my nervous system feels unresponsive.
- Functional Movement Training with Allison at Elite Movement: Allison focuses on functional patterns, teaching me how to stand, shift weight, and move more efficiently. This helps address asymmetries and improves my real-life mobility.
The combination of these two approaches has been transformative. While The MS Gym rebuilds my neurological foundation, functional movement training helps me apply these improvements to daily life. It’s a powerful one-two punch for managing MS symptoms.
Exploring New Therapies
Apart from my regular training, I’ve also been exploring new therapies to address specific challenges:
- Shockwave Therapy: My chiropractor uses this therapy on my hips to target overworked and damaged rotator muscles. While it isn’t MS-specific, it’s helping to release spasticity and improve hip function.
- Swimming: I’m swapping some of my regular training sessions for time in an accessible swimming pool during the hottest months. It’s a double win—cooling and exercise combined!
I’m curious to see how these therapies evolve and will share updates as I go!
Diet and Inflammation: The Role of the Carnivore Diet
One major change I’ve made is switching to a carnivore diet. By cutting out plants and focusing on a meat-based diet, I’ve noticed a significant reduction in inflammation and an overall sense of stability. While this won’t directly cure heat sensitivity, it’s helping me manage other symptoms and feel more predictable in my daily life.
For anyone considering dietary changes for MS, remember that everyone’s body is different. What works for one person may not work for another, but for me, this shift has been a game-changer.
Finding Joy in Small Moments
When everything feels overwhelming, sometimes it’s the little things that keep us going. Recently, I attended an outdoor concert after sunset and took an early morning trip to the beach to dip my feet in the water before the heat kicked in. These small, meaningful moments remind me to stay positive and appreciate life’s simple pleasures.
Final Thoughts: Building Your Toolbox for MS
MS and heat sensitivity can feel relentless, but with the right strategies, it’s possible to adapt and thrive. From cooling tools to tailored movement routines, building a personalized toolbox is key. Remember, you’re not alone in this journey—there’s a whole community out here, ready to support and share ideas.
I’d love to hear from you! What cooling strategies or movement routines work for you? Let’s exchange tips and inspire each other to tackle these challenges head-on. Until next time, stay cool and stay strong! 🌟